Logan | Bravest and sweetest 5 year old | Celebration of life with BMT infonet

Let me begin by saying that I had the greatest time doing the session I'm about to post. This was the first time I've worked with Logan and I enjoyed every minute of it.

His mom shared he is not scared of needles and he’s very good with getting blood draws and shots all the nurses and doctors are always amazed how well he does. Some of Logan's favorite things are Roblox, Minecraft and fortnite video games.

At only 5 year old, Logan has a very unique story. This very sweet boy's mom, Skydale was kind enough to let me share it.

Logan got sick the summer of 2019 right after his younger brother Lincoln was born and right before Logan turned five. It started with a rash and fever. Skydale took him to his pediatrician and the ER a couple times and they had no answers for them. After this brave boy had a fever for 9 day straight they went to Phoenix Children’s Hospital and they thought that Logan had a disease called Kawasaki‘s disease, he was admitted and started treatment for Kawasaki, but he did not seem to get better, he was getting worse.

"My happy playful son was now so sick he couldn’t even walk, he stopped talking, he regressed so much from an independent child to a baby with in a month" Skylade said. For 25 days he had very high fevers. They were so scared. During that time they saw so many doctors rheumatologist, cardiologist, infectious disease, hematologist and oncologist. It took them a month to figure out what was going on with him. The doctors came back with a lot of different diagnosis before they got the right one. When they told them that it was HLH, Skydale had no clue what they were talking about so she got online and she realized what was happening to her son.

Logan was so sick and they never imagine that it could be something this horrible.

Everything went very fast after the diagnosis. Logan was put on treatment for HLH he started getting better and in a week he was sent home. That wasn’t the end of his journey the Drs told them that he needed to be tested to see if it was familiar or if it was secondary HLH when the test came back that it was a genetic mutation XLP1 they told them that a bone marrow transplant would be the only cure.

Hearing that Logan would need a transplant was difficult for Skydale to hear, she had mixed feelings. Logan was so much better, they were home and the treatment was working her son was better. However, understanding what HLH is and knowing that she never wants her son to ever go through that again, knowing that his genetic disorder, would cause it to happen again.

Logan had to have a bone marrow transplant. He was put on the registry immediately and they found a donor. The doctors prepared them on everything that could happen with transplant they gave them the information for BMT InfoNet where they learn things about graft versus host disease and vod.

Logan had his transplant November 25, 2019. It’s seemed like anything that happened Logan always fought his way through it. He did amazing. This is no surprise having the supportive and brave parents he has.He is now a year out of transplant and thriving. Skydale says, "On this one year rebirth day, one of his transplant doctors said that she would like Logan to be a candidate for the celebration of life with BMT info net we accepted and we are so happy that other people are going to get to hear Logan story."

You can see the rest of the gallery here